www.dsap.net guestbook posts from February 27, 2003 thru October 12, 2003
27 Feb 2003
This is my first visit to this site, and a welcome one for me. I feel very "alone" with this DSAP thing. I don't know anybody else with it except my father and brother. My general physician seems familiar with it and says it is very common. I'm doing a long-term (2 mo. +) attempt with Efudex and he recently froze several spots on arms and legs. I've had freezing before and it worked well, but does leave "white" areas where the DSAP was. I've had a diagnosis for about 7 years and at first it didn't bother me much at all. Now I dread summer and being expected to appear in a swimsuit, short sleeves, sleveless tops, etc. I feel like I need to wear a long-sleeved shirt all the time. I'm living in Kansas now, but someday we'll probably move back to Florida and already I think about getting through summer there with long sleeves and pants (I have lesions on lower legs also). I've had many, many bad sunburns as a kid. I wish I knew then what I know now about my sensitivity and inherited problem. Anyway, glad to find this board. Very interesting info. and I'm going to clue my doctor in when I see him in March.
28 Feb 2003
I have been diagnosed as having actinic keratoses and treated w/liquid nitrogen. Now, I wonder at the wisdom of it. It has been 1 wk since treatment, and I feel the fumes (or worse) got in my eye. She used no shield, only told me to close my eye, which I did. I have a red scab type spot now, which is to fall off soon, I was told. I have had this condition on my cheek for over 20 years (I am 79 ) and had it treated in university hospital then. My eye is somewhat blurry, which it wasn't before, otherwise looks ok. Treatment for lesion is 'wash twice a day w/soap and water and apply polysporin'. I wish I had gone to Mayo clinic as no biopsy was done and when I asked my primary doctor here if that was not what he intended, as he thought I should see a dermatologist as the cells can lie dormant for years, and w/age and cell changes, can become cancerous. She is a PA, which I understood, worked under the supervision of a bonafide dermatologist, but not so. Have others had the same experiences? I was told by my primary physician's office that 'this is normal practice for their expertise (dermatologist) so the Internist left it up to them. The work was done very quickly w/little time to discuss anything. It seems, there is a shortage of dermatologists here, so the doctors train these people in what to do, w/out benefit of medical training. In the 1940's, I had sun and x ray treatment of acne and skin problems (standard treatment for the times) and do believe this may have contributed to my skin conditions over the years. I had many seborrhic keratoses removed about 20 years ago at University hospital. The doctor there said they were harmless, but one on cheek was actinic, so should be watched. I never paid much attention to it, only watching that it didn't change. He said "if my ancestors would have stayed in the British Isles, I probably wouldn't have this problem'. I would be interested in knowing what other people have done, in this situation.
02 Mar 2003
Four days ago I had laser treatment for several hundred D S A P spots on both my lower legs. Somewhat painful during treatment but to date I have had no pain only discomfort, no signs of infection either. Very itchy though. I will bookmark this site & let you know how I'm healing in a few months time. Skin Specialist advised my legs could take up to 18 months to fully heal & I may need re treating in a decade or so. I'm 44/female/no sun for 14years/spots since 20's. Kaz Webmaster's 2 cents: Definitely report back! What does your doc say about using lasers for DSAP on arms?
04 Mar 2003
I was first diagnosed with DSAP through a biopsy at age 20. I can remember getting 'spots' on my legs from like age 16. I'm very fair-skinned & went to the beach to try to tan. Ha! Anyway, I've tried (all to no avail): freezing, laser (regular), cold pulse laser, Accutane, Effudex, lactic & glycolic acids, retin-A, Renova, aldara, Tazorac & Aclovate. Whew! No help. Do you notice that sometimes the red spots look alot redder than other times? No idea why.
12 Mar 2003
I am 73 and have had this condition for almost 40 years. It was started by too long in a tanning room. This was before anything was known or shared about this. I have been frozen, ointmented, retin A'd, corizoned etc. over the years. Sometimes I seem to have a remission but it always returns. I think Dermatologists clapped there hands in delight when I walked in the door. Have been seen now by a Baylor dermatologist and she has told me I have porokeratoses and that it is genetic and only heavy sun block will help prevent more occurring. My two daughter are developing this so will encourage them to read all of your info. Also agree that it is possibly connected with autoimmue disease as we have that too. Thanks for your info.
18 Mar 2003
I have had DSAP since I was a teen and now in my 40's they seem to be getting more red and more spots have appeared. I have a lot of freckles so it really hasn't bothered me in the past except for the red ones. I just went to the derm doctor yesterday and she prescribed Retin A and Tri-Luma. From what I can figure out....the Tri-Luma is to bleach out the pigment. Since neither of these drugs are covered by insurance and they are both close to $100 each, does anybody out there have experience with any or should I just stick with her few samples because they probably won't work anyway. I must say that I feel pretty depressed after reading all this information since it looks like I'm doomed to having ugly arms and legs forever. Anybody try a good self tanner than maybe hides some of the spots? I have at least 50-75 spots on each leg! Not all are red but I feel like a leper. I will bookmark this page and check back on anything new that may help. Many thanks to the person who developed this site...it's good to know you're not alone.
22 Mar 2003
To the person asking about self tanner...I have the same question? What is cosmetically worthwhile to use? How about Dermablend? I think you have to buy it at the department store and it's like leg makeup. I'm going to try doing the spray-on tan thing. You go into the tanning salon, and in a little room (while you are naked!) these jets spray you all over with tanner. Easier and more even than applying self tanner. Will post back, but would like to hear what others say. By the way, the spots on my legs that I had frozen are actually looking pretty well. They are red, but fading weekly. A couple are taking longer to heal. I'd like to get them fairly faded before I try the self tanner thing. This is so frustrating! I bought a bathing suit today and then thought, "When am I really going to wear this thing?"
i am looking for my father my name is kahea berard and i am 25 years old my e mail address is kberard@attbi.com.i was told my fathers name is carl berard. if you have any information please e mail me thank you.
Name: Michelle DeSilva 4-14-03
email: 
Location: San Diego, CA
This website is better than any doctor I've been to!! Today I went to yet another doctor who has never seen or heard of DSAP. It was so disappointing!! Help!! Anyone out there have a good doctor in San Diego. Webmasters 2 cents: "Dermatology Associates" in Encinitas.
17 Apr 2003
My name is Risha and I am a Dermatology PA from Florida. I have diagnosed my first case of DSAP and like the article states had no idea where to start. My supervising physician gave my this website and I have printed it out for my patient to read. I will be seeing her tomorrow. I want to thank you for the education I have gotten from this website. I do hope I will be able to manage her condition and also educate her about DSAP. Thanks.
18 Apr 2003
My treatment cycle sounds just like yours--only worse. For years I have been told I had AK--the fact that nothing appeared on my face was "just luck". I have tried Effudex, freezing, and Solarase. The latter was a 5-month cycle (3 on legs, 2 on arms) with the result that my arms in particular look worse than before. I stumbled across your website and then found another place that defined DSAP--I had never heard of it. That means I have been probably working on treatment for the wrong thing for about 17 years. If it's not treatable--ie the spots can't be made to go away, I'm definitely interested in cosmetic options. I live in the Deep South and never going in the sun isn't an option. Wearing long sleeves is pretty intolerable, too. Are there any cosmetics that do a decent job of covering up? Webmasters 2 cents: Just the combination of concealer and self tanning cream.
Risha , Please contact me through email ..I am in medicine myself and wouls love to speak to you ~ !
19 Apr 2003
To the Webmaster~ In reference to this post .... "Many of the photos out there on the Internet appear to be of patients who just came back from a long vacation in Hawaii! This is why I hesitate to post these horrific, untypical photos." Can you please email me with the link to those photos' you were speaking of .. Thankyou in advance`! Webmasters 2 cents: Just type in a search for "DSAP + Skin" and any DSAP site will have some really nasty photos.
22 Apr 2003
Treatments I am trying include Glyquin (a skin bleaching cream), Nicosyn, AHA lotion and Retin A. I do a combination of these creams with decent results. The Retin A is very irritating and does make the spots appear very red. I have started alternating the use of it (Retin A) to every other day. I also take Nicomide (I guess it is the pill form of Nicosyn). It really seems to help with the redness. The total block tinted sunblock works well to cover up spots. My advice would be to use any of the creams sparingly, especially the Retin A.
26 Apr 2003
QUESTION!!!!!!!!!!!! ANYONE I AM GOING ON 4 MONTHS FROM A TREATMENT THAT MADE SPOTS I DIDNT HAVE APPEAR AND SPOTS THAT WERE NOT THAT BAD HORRIBLE. I AM SCARED NOW AND THEY ARE NOT GOING AWAY. THE ONES ON MY LEGS I DIDNT HAVE ARE IRRITATED BY SHVING AND NEVER START HEALING CAUSE I SHAVCE AGAIN. I USED TO BE ABLE TO USE TAN CREAMS NOW I CANT. ANYONE EXPERIBE THIS. A BAD REACTION AND THEN A LOOONG HEALING PROCESS. PLEASE SHARE! PS I USED SOLERAZE!
26 Apr 2003
I am 42, and was diagnosed (finally, after many false starts) with DSAP. I should have known, it really runs in my family. Interestingly, I am part American Indian, and severe Type II diabetes with rapid beta cell deterioration also runs in the family. I wonder if there is a connection? I am currently sanding them down with a luffah and using Aquaphor for cream, it stops the itch. My Dad thought of this, it seems to help. These are very ugly, but I tell everyone I have psoriasis, and they leave me alone. I have been kicked out of swimming pools because the lifeguards ( damn their souls ) have thought that this was a contageous disease. I tell them only to my 3 daughters. I am a Family Nurse Practitioner, and have found most FP people have never heard of this, I will work on educating them. I was thrilled to find other people with this. Is it true ( a derm. told me this one ) that it is from Irish ancestory? By the way, I am a deep brunette with dark skin that tans well and easily. My eyes are also brown. Thanks. Jennifer Fox Webmasters 2 cents: I heard that it is from European roots. There was a rare case in China from which they did the gene study.
04 May 2003
Carl, You should be knighted for your efforts to find the truth about DSAP. A couple years ago I was diagnosed after spending four years driving a bus (with short sleeves, of course). I guess that I was lucky that the dermatologist instantly recognized it and told me in no uncertain terms to stay out of the sun. I had a few spots frozen and they seem to have lightened considerably. She told me that if I got sun on the spots when they were healing, that area would remain brown forever, so I made an "armband" and wore it over the area for a year. I now wear jeans and long sleeve shirts and a hat whenever I am out, and it seems that the progression has been nearly halted or at least slowed a bit. They don't itch anymore, either. Yesterday on the radio I heard about a test for a new psoriasis treatment sponsored by Penn State, but I didn't catch the number. I wondered if it was related to DSAP and whether I should consider calling them. I will be geting a few more spots frozen and will report if there is any success. James
04 May 2003
L.S., Approx 2 years after a heavy traffic accident resulting in a spine fracture, whiplash, displacement of hand bones, internal bleedings, severe brushes on both legs. It took more than a year before the legs improved. At that time we first saw small circular spots at the inside of my left leg. As all the other injuries were treated with betadine (polyvidon iodine), we did that also on those spots. It did help a bit. But it was coming back and spreading. The dermatologist at the hospital tried the normal topical cremes (Zincoxide, vaselini cetomacrogolis, corticosteroids type 1) without any succes. A second opinion at one of our university hospitals, conclude from a biopt erythematose leases and treated me with oral vitamin A, topical retin-A, Diclofenac, Hyaluronicacid+corticosteroids type 4, without any succes and making it very worse As at that moment the appearance of the skin did look a bit like Tinea Corporis our family docter gave me diflucan (150mg one per week) with remarkable good effect. In 4 weeks there was no sign of a skin dissease! But after approx one year it was coming back. Again diflucan but than it took 10 weeks to cure. After another year it came back again, treatment with diflucan 50 mg a day for 3 months did his work for 90%. Again to another university hospital, they concluded from a biopt stasis dermatitis onychomycoses. They gave at first only vaselini cetomacrogolis, after that Calmurid creme(ureum based) with very negative result. So I stopped using Calmurid. Using only vaselini cetomacrogolis the skin did not improve. See attached photo taken may 2002. To be sure to exclude fungis or bacterial infection I asked the dermatologist at our local hospital for skin test for trichophytia fungi, blood test for Borrelia burgdorferi and Bartonella henselae and also for a biopt. Blood and skin test were negative. The biopt gave her the impression of porokeratosis.(see attached photo) But the positive effect of topical betadine and oral diflucan is then difficult to explain. I started again with a daily wash with betadine scrub improving the situation a bit. A test for a couple of months with Daivonex (50mg/g calcipotriol) gave no effect at all. A test for a couple of months with Aldara gave also no effect at all. Ultrasound doppler and X-ray check of my kidneys gave no indication at all for any kidney problems. My age is 72, health in general is good, only one 30mg adalat oros and two 20mg renitec for hypertension, never any skin problems, only allergic to sulfonamiden, sulfonylurea, arylsulfonylurea, thiazide diuretica. No skin problems in my family. Standard blood tests normal Kreatinine 103 (over the last years 7 times lower than 103) BSE (sedimentation rate) 9 cholesterol (H) 5.6 cholesterol (D) 1.3 Triglyceride 1.1 PSA 1.1 Glucose Hb 5.9 ALAT (transaminase) 40 (over the last years 8 times lower than 40 ) Now we are testing the effect of a two cc intramusculair gammaglobuline injection every two weeks combined with the dayly betadine scrub and application of vaseline intensive care. The effect is very positive see attached photo taken april 2003. So we still go on. I hope this resume may be usefull for you Sincerely Henk de Vries, MsC. The Netherlands -- Please note that I tried to sent this by email with the attached photos and photos. That did not work. When you give me an email adres I will sent the photos.
04 May 2003
Please send me those photos ...... I can't wait to see if it appears as DSAP and the results' of all your efforts. Thanks in advance~!
06 May 2003
Thankyou so much for the photos of the DSAP~ I have to say ,this seems as if it's a pretty severe case... The images don't look like the typical images you see of DSAP. The redness was deffinately well improved ,however I can't help but wonder if the redness would have sunbsided somewhat anyway as it typical does with NEWER DSAP lesions' and the tanish spots that remain are very obviously fainter compared to the red tone in the beginning .. This was what I was hoping for and relayed in another post .. For some to please let us all compare photos of lesions' so that we may see if indeed they are alike .. Anyone else have any to share so we may all get a better idea and ALSO to see the characteristics' of the lesions that DR'S are saying are DSAP ... Some Dr's are wrong ,I feel ,the lesions' may indeed have the threadlike borders of DSAP .but whether it is DSAP .. I really question this . Thankyou so much once again~
07 May 2003
Name: Henk Location: The Netherlands Reading all the descriptions of DSAP patients it is difficult to imagine how it really look like. Would it be an idea to publish also photo's?
07 May 2003
Yes Henk, It would be good for you to put these photos here on the website ,this way if others feel their lesions look similar ,it gives a better idea and understanding the extent of what the lesions CAN LOOK like. From the pathologists' view point ,as you said they deffinately diagnosed DSAP ...Well the raised borders ect ,probably gave them this differential ,remember though ,sometimes DIAGNOSES' are based on characteristics' when running across difficult cases ,the raised borders may have been the only distinguishing factor in your case . The raised borders make me want to beleive it as well ,however the shape of the lesions leaves me confused . A diagnosis can be made simply because a certain disease is what it is MOST consistant with ,your lesions look a bit different .. IF you could post these photos' and let others see if their lesions are similar .. THAT WOULD BE SUCH A PLUS~! Thanks Henk in advance ,its' been a pleasure and lets do keep in contact ,through the board or email .. ok ~
08 May 2003
Yes Kelley I agree that on this moment the lesions look different from those given in text books. Therefor I did send you photo's of an earlier state with nice round lesions with red upset ridges and a pale inside. It started with some very small red spots growing to a quarter of an inch circles. By misdiagnosing and wrong treatment it spreaded out on my whole legs and the circles growing into large irregular areas not any longer look like the text books. Therefor only photo's can show this. Henk
08 May 2003
Today two photo's are added to my contribution of 04 may 2003. The first photo shows the situation in 2001. Due to misdiagnosis and wrong treatment it came in 2002 to the state showed in the second photo. I hope the webmaster will include the third photo showing the condition now, being much better with fainted lesions due to the treatment with gammaglobulin injections and dayly betadine wash. Henk de Vries
10 May 2003
Henk , Thanks again .... yes that first photo of the early lesions looks like DSAP. The other image is obviously an exasperation of the DSAP ,in a severe form . Hmmmm. I know I have some DSAP lesions .... Mine are not that red at all ,mine are faintly noticable ,but easily felt ,although some of those DSAP lesions have just turned like a tan and some brown color ..very noticeable and there are many of those arms and legs . None on my back ,stomache ,face or other just the arms legs and hands. I alos have a large degree of photodamge from some phototoxic reactions I had to a medicine ... Although I feel the DSAP is a direct result of that phototoxic reaction ,I never had any skin problem before that and NO family history ANYWHERE of DSAP . I'm going to re-read all your posts' again and comment if I see some pertinant info .. Take care and best wishes Henk ..We will keep in touch ..
11 May 2003
Has anyone tried any type of topical herbal treatment? I have started looking for a book on Chinese Medicine and treatment of other skin disorders like Psoriasis that might help. All the traditional treatments have failed. Any info on this would be greatly appreciated. Karen
11 May 2003
For itching relief any moisterising creme will help. Shisheido leg creme containing 7-15% camelia sinensis seed oil gave me very good results. But its not any longer available in the Netherlands. I also tried a gel based on Aloe vera with 10% teatree oil, it gave also itching relief but you have to combine it with a moisterising creme as those gels tend to dry the skin. Henk de Vries
12 May 2003
In response to the request made about topical herbal treatments, I have been experimenting with "Active Manuka Honey Ointment". It comes from New Zealand and is known for the treatment of a variety of skin conditions. I have used it for about 6-months now and have been pleased with the results. I would encourage anyone with DSAP to at least look into it. Type in "Manuka Honey" under any search engine and do your own research. I would also recommend the use of TotalBlock Sunscreen. Good luck to all!!
12 May 2003
In response to the request made about topical herbal treatments, I have been experimenting with "Active Manuka Honey Ointment". It comes from New Zealand and is known for the treatment of a variety of skin conditions. I have used it for about 6-months now and have been pleased with the results. I would encourage anyone with DSAP to at least look into it. Type in "Manuka Honey" under any search engine and do your own research. I would also recommend the use of TotalBlock Sunscreen. Good luck to all!!
12 May 2003
I agree with the comment about the Total Block sunscreen. I like the tinted formula. As for the Active Manuka Honey Ointment, in what way are you pleased with the results? Less redness, more smooth, etc???
12 May 2003
I am using the totalblock spf65 to prevent having Rosea when I am exposed to sunrays. Is there a retail store in the Georgia area that I can purchase this product?
13 May 2003
This may be a long shot, but I recently met with a really great Doctor. He is actually a medical doctor and practices alternative medicine. When examining my diet over the last few years, we realized I'm consuming an unusually large amount of Aspartame. I drink many diet sodas throughout my day and sugarless gum and sweeten much of my food with Aspartame products. I started this about 5 years ago, when I got the DSAP. I'm wondering if this artificial chemical could be causing a phototoxic or photoallergic reaction. I've now been reading how it is linked to so many other diseases and the doctor I met specifically has seem skin problems linked to it. Does anyone out there also consume Aspartame (in large amounts) or have any thoughts on this?
13 May 2003
I actually chew sugarless gum and drink diet soft drinks sweetened with aspartame on a daily basis. I dont know if there is any connection between DSAP and aspartame, but anything is worth a try! I cant hurt to eliminate it from your diet to see what happens.
14 May 2003
If you like to know the toxicity of aspartame check; www.dorway.com/index.html#top You never use it again. henk de Vries. If yoy want information about "The Chinese Medicine Book" Look at; http://www.mypatienteducation.com/chinmedphar.html?source=sprinks Success Henk. Try also; http://www.giovanni-maciocia.com/books/english/cdpractisebk.html Henk Try also http://ahoneycomb.com/en/bt_04.php Henk
19 May 2003
The person who said they were very happy with the results from using "ACTIVE MANUKA HONEY OINTMENT", could you please give more information about your results. Did the DSAP spots fade etc.? I am still searching for Chinese Medicine book for other topical options and would welcome any help and direction on the subject. Thank You!
Please refer to the following Website for information on Manuka Honey. http://www.natures-fix.com/research.htm The results I have experienced using Manuka Honey have been quite positive. I have been applying the honey ointment to the DSAP on my arms and legs twice daily for about the past six months. It took about a month before I started to notice any real change. What happened is the reddish/brown- irritated lesions I use to have dissipated and the color of my skin of the effected areas is now consistent with the natural color of the rest of my skin. The only evidence I have of DSAP is when I am in direct sunlight; I can just barely see the indentions in my skin where the lesions use to be. Only time will tell if the results are permanent, but you would never know I have DSAP by looking at my skin today. I was hesitant about posting the results of my experiment because I truly do not know for sure what I have stumbled across. As I stated in my previous posting, I would encourage everyone with DSAP to at least do the research on Active Manuka Honey Ointment and give it a try if you are willing. I would be very interested to know the results of others who have tried this.
20 May 2003
Thank you for sharing your experience with Manuka Honey. My question is did you use the Active Manuka Honey Cream (tube) or Active Manuka Honey (that comes in a jar, 500g). Was there a specific brand, the UMF rating (looks like it ranges from 10-18) and did you spot treat or apply all over (was it sticky)? Thanks again!
20 May 2003
Manuka Honey "Ointment" comes in a tube. Apply it to your entire arms and legs. It goes on like sun screen. You can find it on the following Website. http://www.manukahoneyusa.com/ManukaSoap.htm
Do you apply it everywhere or spot treat, how long does a tube last?
A tube lasts me about a month. As I stated, I apply it to the "entire" arm and lower leg. Spot treatment would take to long.
Are you trying other treatments in combindation with Manuka Honey (prescription creams, etc)? I am wondering what the results may be if one is using other treatments at the same time. Are you also trying any new pills/supplements or changes in your diet (besides the honey), I'm just wondering if possibly anything thing else could be connected? Thanks!
No.
25 May 2003
There are various alternative herbal products used for skin problems. Most common are;1. Jesuit's Balsam (Copaiba or Copaiva Balsam) obtained from the Copaifera Officinalis Langsdorffii tree. Used for healing open wounds. 2. Aloe Vera juice, used for sunburn and skin irritation and relief of itching. 3. Beech tar or oil obtained from the Fagus Sylvatica tree used for skin infections and also for skin problems by animals. 4. Green Tea from the Camelia Sinensis leaves or Green Tea Seed Oil obtained by cold pressing Camelia Sinensis Seeds. Both used for skin infections and to relief itching. 5. Tea Tree Oil obtained from the Melaleuca Alternifolia tree used in cremes for skin infections and relief of itching. 6. Manuka honey or Manuka oil from the Leptospermum Scoparium Tree used for skin infections. All those herbal substances combined with a moisterising creme, gel, or honey have a desinfecting effect and relief of itching. BUT SOME PEOPLE SHOW ALLERGIC REACTIONS OR EVEN WORSE GET PHYTODERMATITIS. So check it on a specific spot for at least two weeks before total application. I tried 1-5 and found Camelia Sinensis and Aloe Vera based cremes and gels very useful for itching relief but it did not cure my DSAP. The Beech Tar and Tea Tree Oil gave me allergic reactions so I did not try the Manuka Oil as this is very similar to the Tea Tree Oil. I will try to obtaine the Manuka honey as that should be much milder for the skin. Henk.
27 May 2003
I am the third generation of DSAP that I know of. I've had some of the leisons burned off - which left worse scars than the DSAP itself. My Dad had it as did his Dad. Our family doctor called it "Sailor Skin" when he diagnoised my Dad. Our family originally came from Texas, I heard DSAP was carried to Texas from Scotland or England. I have been told another name for it is "Celtic Skin," and that it is caused by holes in the epidermis - a genetically adaptive device to let in larger amounts of Vitamin A & D in dark climates. The worse part about having the scars is that sometimes people act as if I have a contagious condition, others ask what happened to my hands, arms and legs with pity in their voices. It causes me no discomfort - other than to my pride.
27 May 2003
I hear you loud and clear about the comments from people! "is that a rash?" I think that some people dont think before they speak. If someone had a wart on the end of their nose, no one would say a thing!
28 May 2003
Has anyone used creams or gels containing DMSO (dimethylsulfoxide)? Henk
28 May 2003
I use a cream that contains sodium sulfacetamide, sulfur, zinc oxide and dimethicone, but not dimethylsulfoxide. what have you heard about dimethylsulfoxide?
29 May 2003
DMSO is claimed by some alternative medication suppliers as a wonder cure to all kind of infections and also skin problems. But in medical literature I only find "the use for "Post Traumatic Dystrophie" and creams for sport injuries. Henk
02 Jun 2003
For cover up, try www.smartcover.com for burn victims. I havent tried it yet, but another person had written something about it in a previous entry on this webpage.
05 Jun 2003
Wow, what a great website, although a bit depressing. I have had DSAP for twenty years and keep hoping for a cure. I have tried almost all of the prescribed meds listed with no success. I was hoping Aldara would be different and it created eruptions on my arms that "weeped" like a poison ivy rash does. My mom has the same diagnosis, less severe and she has had some success with chemical peels. Has anyone else tried this? I have found that my spots look the worse when I use a moisturizer that is very softening and after I run (not in the sun) so I assume that is circulatory related. I am going to check out the sunblock info and the make-up referral since I live in the south. The best part of this website is knowing I am not alone with something that isn't life threatening but sure gets lots of comments. Thanks Webmasters 2 cents: Hopefully someday a rich celebrity will pour money into DSAP research!
05 Jun 2003
To the comment on 6/5, you had mentioned success with Chemical peels. First, what type of chemical peels & how many and second, what do you mean by success (really good or OK)? How have they changed?
05 Jun 2003
Can anyone offer any advice? I’m still trying to understand this. I developed DSAP last summer; it seemed like overnight I had 40 on each arm, a few on my chest and back, and a few on my legs. Since then I have avoided the sun and watched them closely. I don’t think I’ve got anymore, so far. But will it just gradually keep getting worse (right now I don’t think people would notice them). How long does it take? If I’m in the sun will I get an immediate reaction, like 20 more? Or is a day in the sun mean more in like a month, 6 months? I can’t figure out what is going to happen? If I stayed out of the sun will I get more, in a month, in a year? Or does it really differ from each person? Any thoughts would be appreciated! Webmasters 2 cents: Visible DSAP spots are developed over many years of accumulated sun exposure. For some reason DSAP seems to become at least cosmetically visible all at once. That's been MY experience too. Just because it took 30 years to develop 10 spots doesn't mean that it will take another 30 years to develop 10 more. Look at your skin against a back drop of light and you will see other areas of damage that aren't yet visible. Look for the characteristic faint round outlines of DSAP that hasn't fully "grown" through. I've had visible "cosmetic DSAP" for about 5 years now and some previously non-hyperpigmented spots have slowly taken on more color. This occurred even though I have meticulously avoided the sun! Think of our skin as jars of jelly beans that have slowly been depleted. These jars are running on empty! Stay out of the sun and follow these steps of prevention.
12 Jun 2003
Someone asked why DSAP was more prevalent in women. My theory is that it may be related to hormonal differences between men & women. I have had DSAP since my late teens. I am now 44. When I first began researching this I remember reading an article which described two types of DSAP. The most common type comes from longterm over-exposure to sunlight or other radiation. This usually appears when a person is in his 40's or 50's. The other type occurs when a person is much younger and according to this source may be related to puberty. There is some slight alleviation of symptoms for women with this type as they reach menopause. If you consider that DSAP abviously can remain latent unless something (sun, UV or raditaion exposure)causes symptoms to appear maybe estrogen or progesterone lowers the exposure bar for women. In my family I am the only one who has had this disease. If it is truly autosomal dominate then perhaps the latent form is more common than we think. Other wise I would expect at least one of my parents, half their siblings and one of their parents to also have this disease. (I appologize that I can not be more specific on the source of this info. It was 5 or more years ago that I read this.) Anyway that is my theory.
12 Jun 2003
Someone asked why DSAP was more prevalent in women. My theory is that it may be related to hormonal differences between men & women. I have had DSAP since my late teens. I am now 44. When I first began researching this I remember reading an article which described two types of DSAP. The most common type comes from longterm over-exposure to sunlight or other radiation. This usually appears when a person is in his 40's or 50's. The other type occurs when a person is much younger and according to this source may be related to puberty. There is some slight alleviation of symptoms for women with this type as they reach menopause. If you consider that DSAP abviously can remain latent unless something (sun, UV or raditaion exposure)causes symptoms to appear maybe estrogen or progesterone lowers the exposure bar for women. In my family I am the only one who has had this disease. If it is truly autosomal dominate then perhaps the latent form is more common than we think. Other wise I would expect at least one of my parents, half their siblings and one of their parents to also have this disease. (I appologize that I can not be more specific on the source of this info. It was 5 or more years ago that I read this.) Anyway that is my theory.
15 Jun 2003
Regarding the sray tan idea - The artificial tanners turn darker on dry areas of the skin. So not only did it make my spots appear even worse, it darkend spots that were not yet pigmented. It made my skin look twice as bad.
15 Jun 2003
I have tried my luck with a bunch of self-tanners and I have found some brands do make the spots darker and some make them only a little bit darker...which I can handle because I look a whole lot better with a bit of a tan than not. I recommend Neutrogena self tan (I used dark in the foam, it barely makes the spots darker…overall it’s much better)Good luck!
16 Jun 2003
Thanks for responding to my self-tanner question! Each time I use it the spots look worse. I find that mixing sunblock with the tinted Total Block sunblock works the best.
17 Jun 2003
I saw a coupon today for a psoriasis skin treatment called Acadia. Has anyone tried this and if so what kind of results did you have. If there is a need for test patients for new drugs treating DSAP I would be willing to participate.
22 Jun 2003
Has anyone ever tried Copaiba balsam (synonyms; Copaiva, copahuba, Jesuit's balsam) an oleoresin from the tree Copaifera Offficinalis? For hunderds of years used for all kind of skin problems. Henk
27 Jun 2003
I, like others, have been wearing these spots for several years before being diagnosed as porokeratosis by my dermatologist. He is now trying a new drug just out on the market (since 1999 I believe) foreign, called Solaraze Gel, I pulled it up on the internet, it is being used to treat skin disorders. I will let you know how it turns out. It will take at least one month, maybe four, my doctor says, but four months is OK,compared to having this for three years and getting worse. I have the spots on my lower legs and lower arms, it was first called by dermatitis, dry skin, or psorisis, until I saw the dermatologist who told me it was genetic and was porokeratosis and freezing would not help. So he seems to be right on the money after reading your site. I think I will stick with his treatment and hope it works. I will let you know. Yes, he said wear long sleeves, hat and stay out of the sun. I did not believe him, but he was right. Sun does make it worse. Wear the sleeves, stay out of the sun. Love to hear from anyone else who has this and has any progress in cure. Connie Ream
28 Jun 2003
Connie I hope that the solaraze gel (3% Diclofenac) will help you. It did not work for me at all. Maybe my situation was allready to worse. Henk
29 Jun 2003
I've tried Acadia. It did nothing - not even to my ezcema.
05 Jul 2003
Okay .... listen ... for those of you who have tryed cryotherapy using liquid notrogen from your dermatologist ..which freezes at -196 can also be used for age spots ect....... this can leave scarring if frozen too deeply ... There is a product that can be bought at eckerds ,walgreens and walmart it is called wartner ... it is NEW , it is for the removal of warts using the same freezing method ,yet freezes at around -70 .... the scarring is less risky due to this .. note if it REMOVES a thick wart ,don't you THINK it can remove thin keratotic areas like DSAP ,age spots ect??? Freezing worked beautifully on a LARGE tan colored DSAP of mine .... however it was terribly expensive and this stuff costs only 20 dollars ! If any decide to try it let me know!
05 Jul 2003
Well ,I should have said I am going to try it ... WHY NOT? I've even thought of having a phenol peel for my entire arms and hands,but they say that phenol peels are too deep fopr large ares' like that ,they only do them on the face .. I'd try anyhting just to smooth the ares' enough so that atleast the self tanner I use will go on smoother ! This is one terrible condition ... although I know it could be worse ,but since THIS is what I am dealing with ,ofcourse I want to try to resolve it ... I'll let you know how it works ...two weeks and the areas I burn should be healed .. Although they'll probably be a little red still , as they were when I had dermatology freezing with liquid notrogen ,but that does goe away and I am sure any areas' that are red will go away with this too ,in time... and atleast be SMOOTHE~~~
06 Jul 2003
Just wanted to say that I've lived with this about 10 years now, but was only diagnosed in '99. After trying many different dermatologists, a new woman started her clinic in town, and decided to give her a try. Fresh out of school, and she hit the nail on the head first time out!! I believe that my mom had it, although she passed on in '95. This summer has been the worse, by far!!! Does this disease continually get worse and worse? I've started using Dovinax at the end of May, but don't see any results as of yet. One interesting note, was in Tunica, MS. over the 4th, and was sitting waiting for the shuttle, and happened to see another woman's legs that looked just like me. We talked, and she was not aware of what she had. I shared this website with her. First person I've ever met with the same disease. Susan NW Arkansas
12 Jul 2003
Fellow DSAP patients: June 2003 Vogue had an article about sunscreens containing "Mexoryl SX" -- an ingredient not currently approved by the FDA for use in U.S. sunscreens. This ingredient provides broadest spectrum UVA and UVB protection. It is in two sunscreens referenced in the article "Photoderm Max SPF 100" and "Anthelios L SPF 60" which can be bought in Europe and Canada and on the Internet. Both can be found at www.idealskin.com. Go to the website and type in the name of either product and you'll find them.
12 Jul 2003
Hi Everybody, RE: Spray On Tan (Msytic Tan) LONG I've been e-mailing another member on this discussion group and thought I'd share what I wrote to her. I am copying what I wrote from three different e-mails so I don't have to retype it all: Today I went and paid $10 to do the Mystic Tan (spray on tan). It didn't take long at all and I like the results a lot. Made my DSAP blend in much better. I might go somewhat darker next time I go. It was really easy. I'd say, try it at least once and see what you think. Takes about 4 hours for the color to really deepen. If I go back, tans will only be $6 each. Apparently you have to do this about once a week. I think it is worth it to feel better in short sleeves. It's not miraculous, but the DSAP spots look more like a fading rash now, rather than the angry red spots I have. And then I wrote back in reply to this person's questions: Anyway, believe it or not, the DSAP spots don't look darker. Yes, I've had this happen with at home tanners. Sometimes they'd really make the raised ridge around each lesion really stand out and then I'd just be depressed than ever. This is more like cammoflauge. This method doesn't streak at all. It is pretty much on you when you step out of the booth and you towel rub off the excess. I was sure I'd have streaks from using the towel, but I didn't. I guess it "stains" you really fast. God only knows what's in this stuff...it also has moisturizers in it. Maybe that helps. The people at the salon really instructed me to put on lotion (they provide it) all over my hands, especially palms and fingernails. Same with feet. I did most of the top of my foot and really put a lot on my toenails. Then, when you step out of the booth after spraying you use baby wipes to wipe off all of that lotion. I don't have a demarcation line on hands/feet. The only problem was last night when I washed my face. The water I was rinsing with ran down from my hands to my elbows and left very faint trails of lighter skin. You aren't supposed to shower for like 6 hours and I guess I should have waited longer to get my newly tanned skin wet. Anyway, I just spread a little of my own self tanner there and in the morning it all looked blended again. Final comments on the spray on tan and on freezing: Anyway, you get dressed immediately after toweling off. There is a very slight perfume smell, nothing offensive. You feel sort of "tacky" for an hour or so then you feel really dry. They say to wear something loose. I wore an old pair of sweats and a long sleeved shirt. You better believe I have plenty of those! Ha! Ha! One thing that kinda threw me off - this mist is spraying all over the place and I couldn't hold my breath that long so I breathed some in, but I never saw that it did anything, even when I blew my nose hours later. They didn't tell me to hold my breath. That was just a natural reaction. Today I went house hunting with a realtor and wore short sleeves and capris and didn't think once about my arms. I know they are still noticeable, but not like before. Freezing - I had the worst, ugly reaction. My frozen spots immediately blistered up and filled with fluid and were pretty painful for a couple of days. Pain that I was aware of, and I take it pretty well. Then they took FOREVER to dry up and fall off and I had a really hard time not picking at them (gross, huh?). I soaked my legs in the bathtub and that helped soften up the crusty parts a lot. Eventually they all fell off (the scabs) and there was smooth skin, but it was angry red. This took a couple of months to fade. Now they are light pink and my dr. said they will eventually be white, but not as noticeable as the red marks. So the whole process was painful (but tolerable) and ugly but now I can see huge improvement and the spots aren't rough anymore. Just smooth skin with a fading pink area. I do have extremely sensitive skin (I still break out at this age) so that might be why I reacted so strongly. Hope these comments were helpful to some of you. There were men and women doing the Mystic Tan thing when I went.
12 Jul 2003
I ordered Manuka Honey Ointment after reading about it here. It's not doing much for me, I am sorry to report. But I am going to try Egyptian Magic All Purpose Healing Cream. Yes, I know. It sounds hokey, but I've read about it several places (include Allure mag, which has good skin care reporting, BTW) and then went to the website and saw a relevant testimonial. Relevant to me, at least, since I am the person who has posted messages on this site about how freezing is the only thing I've found that works. Here's an excerpt from the testimonial "...five days ago I went to my dermatologist to have a number of pre-cancerous spots removed from my face by cryosurgery...all the spots have disappeared in only five days." This from a 75 year old woman, "within a very few days actually found that the multiple sun/age spots on my hands had started to fade." If I have any freezing done this fall I will tell you if this cream speeds up healing. I'll also let you know if it fades the color of the DSAP lesions I have already. It may do neither, but a gal's gotta have hope.
12 Jul 2003
Has anyone reading this site had success treating their DSAP with Levulan? I read the earlier posting about one DSAP patient meeting another DSAP patient who'd had success with Levulan. And I also read Carl's follow up note with information on cautions and concerns. Any news since then?
12 Jul 2003
I too ordered the manuka honey and it's been about 5-6 weeks and no change, unfortunately.
12 Jul 2003
Efudex: Has anyone had success? I tried Efudex on my right upper arm and I'm actually very happy with it. It was awful process though. It took about 8 days and my arm looked like I had been extremely burned, skin red and raw. But amazingly it healed in about 2 weeks. And in another month or so the discoloration greatly subsided. It has been about 7 months now and it looks great. It is slightly a different color but no one would notice it (it really looks normal). And while the spots are still there it's like it filed them down and they are not noticeable (no one would notice them). From what I hear they make come back in a year or two, but for now it looks 100% better than my other arm. I'm going to do my other arm in the fall when I can wear long sleeves. It was painful though, but worth it. Has anyone had good or bad results and also if anyone can comment about how long it lasts (when will they return)? Thanks!
27 Jul 2003
Sorry ...it has been three weeks since I said I was going to try that product that freezes ..I just did it today ...! I will update if it works ok .. Wasn't too painful ..I was able to control how long I let the stuff stay on so it didn't go too deep so there would be no scarring . I did almost every spot .. I may have missed one here and there ,but if I did ..I can always get it later .... I used two and a half cans..
28 Jul 2003
Good news! I was diagnosed with DSAP about 7 years ago and have many scars on my legs and arms from DSAP. I recently tried (successfully all 3 times) in preventing significant scarring from DSAP eruptions. Previously I was prescribed efudex which had no positive affect on existing scars. However, using efudex at least 3 times a day directly on a newly erupting site has shrunk the resultant scar diameter to a pin point. I've proved this to myself 3 times now -- always applying the efudex pointedly to the site immediately on seeing the red "bite like" skin eruption and continuing through its cycle. Good luck!
28 Jul 2003
I was diagnosed with DSAP last summer. This is the best websight I have seen on the condition. I recently heard a news report about a new cream called Dimericine. It is still under FDA review. I e-mailed the company, AGI Dermactics, to inquire if they had tested the product on patients with DSAP. Amazingly, I received an e-mail back from them indicating that they had not. In order to make them more aware of DSAP, please e-mail them at staff@agiderm.com to let them know we're looking for "a cure". Perhaps they may be willing to test the product on DSAP as a result. Good luck!
03 Aug 2003
Here is some info on this drug someone mentioned ( Noy yet approved by the FDA ) Dimericine is a cream containing a DNA repair agent harvested from pelagic bacteria and algae, and delivered via a viral transfection agent. Dimericine is in Phase IV FDA testing, and has been shown to reduce the incidence of skin cancers by about one-third, and of actinic keratoses by about two-thirds. The company that developed it, Applied Genetics, Inc.--Dermatics, has licensed cosmetic rights to a company called Elan Pharmaceuticals with the hope of eventually including Dimericine in suntan lotions. (It may prove to be too expensive for that purpose.) In the meantime, two companies are selling a "DNA repair cream" (both are selling the same cream and are making the same claim) that is ostensibly Dimericine, although they don't claim that on the bottle. I'm trying it on my left hand, and on the left side of my face. The results are too early to call just yet. The cream is very expensive, running $45 a bottle plus $10 S&H from Synergy, or £21.99 + £3.50 S&H from Apple Healthcare in the UK.
03 Aug 2003
Im sorry to mis - inform you ..The info I gave was from a website .. That was that persons' post ,not mine ..I simply copied and pasted it so you all could see the info .. I assume THAT person is trying it ,but the post was not in a forum ,such as this ,but just from info on that webpage .. So I guess we won't know HOW effective his treatment was .. Again sorry for the confusion. An update on the Wartner product though ,,the one that freezes ..well I guess I didn't hold it long enough on the spots ,because at first it appeared it was going to do just as the freezing from the dermatology office ..you know the swelling and redness around the spot that turns to a blister.. Well I git the swelling and such but NO blister ..I think I should have held it on a bit longer.. I'll try again soon though ,when I get my nerve again~!
10 Aug 2003
Not surprisingly ,is the finding that levulan is not a good treatment for DSAP..... it only stands to reason that this PHOTOTOXIC treatment .... is actually the worst thing to be used ,hence this is WHAT brought on my DSAP.... Phototoxic treatment is not safe ,it cause severe aging of the skin as well will eventually excasberate this condiditon ... .trust me I have studied phototoxicity for 5 years... everything there is to know about it ,from books I have purchased ..all info the FDA provides as well as many chemists' scientists ect .... and sadly the little info dermatologist know about it ,I have been the one to educate them in phototoxicity . Topical photodynamic therapy in disseminated superficial actinic porokeratosis. Nayeemuddin FA, Wong M, Yell J, Rhodes LE. Photobiology Unit, Dermatology Centre, University of Manchester, Hope Hospital, Salford, UK. Photodynamic therapy (PDT) has been reported to be useful in treating certain nonmelanoma skin cancers and a variety of benign skin conditions. We examined whether PDT might be effective in the treatment of disseminated superficial actinic porokeratosis. Three patients with classical disseminated superficial actinic porokeratosis had a small test area treated with topical aminolaevulinic acid PDT. Following the first treatment, the disorder cleared in the test area in one patient, but failed to respond in the other two patients. After subsequent treatment, the initial benefit seen in the first patient was not sustained, and no response was seen in the second patient, while the third patient was not retreated due to hyperpigmentation induced by the procedure. The results obtained in this small case series suggest that topical PDT is not a promising treatment for disseminated superficial actinic porokeratosis.
14 Aug 2003
Reading all the comments of patients with DSAP I get the feeling that some dermatologists suffer from the "beer brewery horses syndrome" . Hundred years ago beer breweries braught there beer barrels on havy horse drawn lorries. For safety the horses had eye blinds and ear caps so they could not see and hear only going straight forward. to let people know they were coming they had ringing bells around there neck. Now I sometimes have the feeling that dermatologists do not listen and look to the patient but only with ringing bells give there opinion. I call that the "beer brewery horses syndrome" Henk
14 Aug 2003
My chiropractor suggested trying Flaxseed oil (capsules taken by mouth). We don't expect a cure, but I have noticed a reduction in the size and redness of my lesions. My DSAP is only on my lower arms, but I have had it for about 15 years.
19 Aug 2003
at the moment i am using hypoderm just to hide this black pigmentation but the problem is it go away for only two weeks it comes back again. it will never cause damage to my skin or cancer problems.
23 Aug 2003
I am a 50-yr old white female, diagnosed with DSAP at age 26 (one lesion on arm). I know now that my mother has the same disorder but was treated for AK's. She is in a nursing home now and her arms and legs are covered in the typical red/brown/scaly lesions, some quite large (up to 3 cm). For me though,over the years after changing locations and physicians, my original diagnosis of DSAP was translated into AK's and therefore, I received years of treatment for AK's. I did not know enough then to research and took for granted that AK and DSAP were the same disorder. I had the coveted "peaches and cream" complexion as a teen and young adult, but since you weren't "cool" without a tan, (I was raised on the east coast, always near the beach and suffered sunburns every summer until age 26, typically burn, peel, tan, burn, tan) Looked great with my black hair and blue eyes. You should see me now! YUCK! My arms and legs are peppered with DSAP lesions, interspersed with scars from liquid nitrogen treatment for AK's. The one saving grace is that I have avoided the sun as best I could since age 26, and my face has been spared to a degree. At age 50 I have noticed about 5-6 lesions on my cheek on the left side (where the suns hits me when I've driving), but these lesions have not turned red/brown yet. I have two sons, ages 18 and 23 and checked both their arms recently and was mortified to see multiple lesions on the arms of the 23 year old. I have warned both children about the dangers of sun exposure, but doubt they will discontinue sun exposure until it's too late. I am thankful to have found your website and happy to contribute my story to your guestbook. I manage an urgent care center here on the Outer Banks and have access to physicians and dermatologists and have tried to help educate everyone about this little known disorder that is so prevalent. I manage living with the disfiguring skin disorder by always wearing long pants and long sleeve clothing at work. Whenever my legs are exposed, people just think I've been eaten alive by mosquitos or other insects! I do submit to frequent liquid nitrogen treatments (as I keep my legs and arms covered) and it takes about 8-12 months for the lesions to fade from bright red to somewhat skin tone color. I do have some scarring from the LN, but prefer scars over the lesions. I have an upcoming appointment with my dermatologist, but after spending the weekend reading everything I could on the internet about this disorder, I don't expect he'll have a new treatment. At least he can do a skin check to make sure that I don't have anything else going on in addition to DSAP. It was comforting to read that these usually don't develop into cancer, but at least the dermatologist can keep a watch. Thank you for allowing me to share this with you and others.
23 Sep 2003
I'm 42 years old and have DSAP on my legs and arms. Since two years I have it and its spreading very rapidly. I read in a magazine that Solaraze gel (3% diclofenac) is the first treatment to actinic kerastosis that really cures. I wonder if it also helps for DSAP because usually the same medicines are used. I read it is only available in the USA, as I live in Holland, Europe, I can not get it. On the internet I found only 1% diclofenac gel. Is there anyone who used this creme? And pls can one of you tell me how to get it? Best regards, Dasja Hovenier, Holland
30 Sep 2003
I am a 40-year-old male who has had DSAP for approximately 10 years. A little over a year ago I was diagnosed with having Crohn's Disease in addition to DSAP. A critical part of my daily treatment includes taking 150MG of a maintenance drug called Azathioprine, which is a immunosuppressive medication. I read somewhere that DSAP patients have very high susceptibility to develop DSAP when their immune systems are dysfunctional. Ironically a month or so after taking this medication, I noticed that my skin started clearing from the red irritated spots that use to exist and has been this way ever since. I have no idea if this if this has anything at all to do with me taking this medication. However I thought it might be reason for someone with medical or pharmaceutical knowledge to investigate.
30 Sep 2003
If the drug is an immuno-suppresive .. then it supresses the immune system much like transplant patients need immunosuppresive drugs so that their bodie's do not think that the new organ is foreign and reject it,, So if DSAP ...is indeed linked to the bodie's failure of the immune system ...meaning one may have a weak immune system ..then taking a immune suppresor seem's ilogical ... However if DSAP is such like an alergic type response .. Then taking a suppresor ...may have some benefit .. Makes NO sense does it .. WHO KNOW's
08 Oct 2003
I have these systems of porokeratoses most pronounced on my legs (ankles to knees) and somewhat on my arms and chest. The conditioned is exacerbated by exercise and body heat. My dermatolgist is suggesting a drug called soriatane (25mg/day) and Solicyl acid (10% petrol) on the most effected area. I have also had Carmol 40 lotion (topical treatment) to enhance the soriatane drug. This is being tested on a trial basis to see if these have any effect on the effect of the porokeratoses. The soriatane has some side effects on your chlorestorel levels and also dries your skin. I'm being monitored for chlorestoral levels. I'm going to try this approach under my dermatologists care for some period of time to see if there is any improvememnt.
09 Oct 2003
Soriatane is a medication for severe psoriasis not for porokeratosis. Females must read about the side effects in; http://www.rocheusa.com/products/soriatane/pi.pdf Combination with alcohol must be avoided. henk
12 Oct 2003
Go to the website below and you'll find links to sites with sun protective clothing. You have to scroll about midway down the page to find the info. Also, I like Neutrogena's new ultra-sheer dry touch sunblock (SPF's 30 and 40) it is not greasy on my face and does not leave stains on my clothes but offers good protection. Goes on very nicely. And for those of you who itch as part of DSAP (as I sometimes do) I read about a product in the latest People mag (Seigfried & Roy is the cover story, Oct 20 date) called "Boudreaux's Butt Paste" invited for diaper rash but used for other itches and chafes. Perhaps worth trying. All best to everyone else with DSAP. http://www.plasticsurgery4u.com/web_links_folder/sun_protection.html